MSN 5550 Health Promotion: Prevention of Disease
Case Study Module 14 Instructions: Read the following case study and answer the reflective questions. Please provide evidence-based rationales for your answers. APA, 7th ed. must be followed. 500 word limit. provide in text citation and reference from 2019 to date
CASE STUDY: Caregiver Role Strain: Ms. Sandra A.
Sandra, a 47-year-old divorced woman, received a diagnosis of stage 3 ovarian cancer 4 years ago, for which she had a total hysterectomy, bilateral salpingo- oophorectomy, omentectomy, lymphadenectomy, and tumor debulking followed by chemotherapy, consisting of cisplatin (Platinol), paclitaxel (Taxol), and doxorubicin (Adriamycin). She did well for 2 years and then moved back to her hometown near her family and underwent three more rounds of secondline chemotherapy. She accepted a less stressful job, bought a house, renewed old friendships, and became more involved with her two sisters and their families. Sandra developed several complications, including metastasis to the lungs. Then she could no longer work, drive, or care for herself. She had been told by her oncologist that there was nothing else that could be done and that she should consider entering a hospice. She met her attorney and prepared an advance directive and completed her will. She decided to have hospice care at home and, with the help of her family, set up her first floor as a living and sleeping area. She was cared for by family members around the clock for approximately 3 days. Sandra observed that she was tiring everyone out so much that they could not really enjoy each other’s company. At this time, she contacted the Visiting Nurse Association (VNA) to seek assistance. Her plan was to try to enjoy her family and friend’s visits. After assessment, the VNA nurse prioritized her problems to include fatigue and caregiver role strain. Other potential problem areas that may need to be incorporated into the care plan include anticipatory grieving and impaired comfort.
Reflective Questions
1. What are some of the stresses on Sandra’s middle-aged sisters and their families?
2. What resources are available to manage these stresses and support the sisters while caring for their dying sister Sandra?
3. Describe Sandra’s feelings about dependency and loss of autonomy because she is unable to do her own activities of daily living any longer
Title: Caregiver Role Strain: Supporting Ms. Sandra A. and Her Family During Terminal Illness
- Stresses on Sandra’s Middle-Aged Sisters and Their Families:
Sandra’s terminal illness and need for continuous care have put significant stresses on her middle-aged sisters and their families. Some of the potential stresses they might be experiencing include:
a) Emotional Distress: Witnessing a loved one’s suffering and facing the reality of impending loss can lead to emotional distress, anxiety, and sadness for Sandra’s sisters and their families.
b) Time and Commitment: Providing around-the-clock care can be physically and emotionally draining, leaving little time for other responsibilities, personal needs, or leisure activities.
c) Financial Burden: Caring for a terminally ill family member can impose financial strain due to medical expenses, home modifications, and potential loss of income if they take time off from work.
d) Role Changes: Assuming the role of caregivers can disrupt the daily routines and roles of Sandra’s sisters and their families, potentially affecting their work-life balance and personal relationships.
e) Anticipatory Grief: Sandra’s sisters may already be experiencing anticipatory grief as they face the impending loss of their sister, making it challenging to cope with emotions and focus on caregiving.
- Resources to Manage Stresses and Support Sandra’s Sisters:
To manage the stresses and support Sandra’s sisters during their caregiving journey, various resources are available:
a) Hospice Services: Hospice teams can provide specialized care for the terminally ill at home, offering medical, emotional, and spiritual support to both Sandra and her family members.
b) Visiting Nurse Association (VNA): The VNA can offer home healthcare services, including nursing care, therapy, and assistance with activities of daily living, easing the burden on Sandra’s sisters.
c) Support Groups: Local support groups for caregivers can offer a safe space to share experiences, emotions, and coping strategies, helping Sandra’s sisters feel less isolated and overwhelmed.
d) Respite Care: Temporary respite care services can provide relief for Sandra’s sisters by giving them short breaks from caregiving responsibilities.
e) Counseling Services: Professional counseling or therapy can help Sandra’s sisters and their families cope with emotional challenges and facilitate effective communication.
f) Financial Assistance: Exploring financial aid and community resources may alleviate the financial burden of caregiving.
- Sandra’s Feelings about Dependency and Loss of Autonomy:
Sandra is likely experiencing feelings of sadness, frustration, and a sense of loss due to her dependency on others for activities of daily living. As her condition worsens, she may feel a loss of control over her life and decisions. The inability to care for herself and rely on others may evoke feelings of vulnerability and helplessness.
Sandra’s feelings about dependency and loss of autonomy may be complex, and it is essential for her caregivers to approach her with empathy and compassion. They should involve her in decision-making as much as possible and respect her choices regarding her care and support.
In conclusion, caring for a terminally ill loved one like Sandra can be emotionally, physically, and financially challenging for her middle-aged sisters and their families. By utilizing available resources and support services, they can better manage their stresses and provide compassionate care to Sandra during this difficult time. Understanding Sandra’s feelings of dependency and loss of autonomy is crucial for providing personalized care and support as she navigates through her end-of-life journey.